Being in hospital when living with Alzheimer’s disease and other dementias

Being in hospital can be very frightening for people who have dementia, the unfamiliarity of faces and the environment, coupled with much noise, can lead to some people experiencing fear. This is made worse when they may not be able to understand what is being said to them and often when they are unable to express themselves clearly. Such fear can result in an expression of agitation which can become quite severe if they are not reassured and made to feel safe. The best way to help is for all staff to understand some important information about the person. If your loved one is in hospital you may want to send in some of the following information for the staff and if possible some pictures.


 Information to give to the nurses

  • What name does the person want to be called by


  • Who are the most important people in their life (inc pets)


  • What routines work when at home (and what doesn’t)


  • What helps the person when they feel anxious (and what may make them feel worse) – this may include music, fiddling with meaningful objects, looking at a view


  • What to say to the person to help them feel less anxious e.g. “I understand you are missing your wife, tell me about her, was she a good cook”


  • What the person can do for themselves (and what they need help with) in terms of personal care


  • If they wear a hearing aid and glasses


  • Important points that you would like the staff to know


  • Cultural, religious and spiritual beliefs (this may include practices related to personal care, e.g. ablutions before prayer)


  • How the person may take their medication


  • What the person’s sleeping pattern is like, what helps them sleep?


  • How they are able to get up and out of a chair and if they need help with walking.