My name is Dr. Jane M. Mullins and I am a dementia nurse consultant. My book is here to offer support and help along the way when you or a relative or friend have received a diagnosis of dementia. This includes Alzheimer’s disease; vascular dementia; Lewy body dementia; frontotemporal dementia or Parkinson’s disease dementia as well as rarer conditions. Based on listening to and supporting caregivers for over 25 years and up to date research, I can pass on my knowledge and advice to you. If you’re a caregiver, spouse, partner, daughter, son, sibling, friend or a parent, Finding the Light in Dementia is for you.
Each chapter in Finding the Light in Dementia will help you by:
- Explaining what your loved one may be going through and how they are experiencing the world around them.
- Providing you with valuable tips and advice that will help you both.
- Giving examples through short caregiver stories.
- Larger font that is easier to read.
- Summary pages at the end to refer to quickly in a time of need.
- Providing notes pages for you to write in, that tailors the information to your personal situation:
- To communicate specific care needs to other family members, friends, caregivers & professionals such as likes and dislikes, what works well and what doesn’t, time of day they like to get up; what activities may be enjoyed or not; what may trigger certain changes in mood and behaviour and what can help; life history information and so on……..
- Personalised care plan/diary that will save you time and effort explaining whenever another person visits you both.
- Encourages others to connect with your loved one when they may have difficulty communicating with them.
- Allows you to document changes that may happen over time.
- Acts as an aide memoir for questions you may want to ask your Dr. and for your Dr. to write in at appointments (to save you memorising everything).
- Provides mood and behaviour journals and quick references about what to look for when considering professional care and what to pack in the event of a hospital admission.
- Finding the Light in Dementia is a comprehensive resource for your loved one’s care needs and yours!!
“Caring for Mum who has Alzheimer’s had been made much easier after reading this book. Practical suggestions that family and paid carers can work on together has created greater consistency of care. Mum is happier and less anxious. Brilliant resource. Highly recommended” Angharad.
Finding the Light in Dementia: A Guide for Families, Friends and Caregivers
It’s absolutely amazing, I think it should be compulsory reading for everybody at the start of dementia. I wish it had been around when my husband started developing itElizabeth Cox
“This little book is a life saver for people who have dementia and their caregivers, families and friends. I think it should be given out by every professional who gives the initial diagnosis. People need something to grasp, and the sensitivity, simplicity and emotion contained in this book may help them cope better.” Lorraine Morgan, Nurse Gerontologist
Finding the Light in Dementia: A Guide for Families, Friends and Caregivers is an essential book that explains common changes that can occur in those living with dementia. By offering valuable approaches, tips and stories, I can help readers learn to care for and maintain a connection with their care partner.
This book offers hope and strength to all of those affected by dementia, whether you’re a spouse, partner, daughter, son, sibling, friend or a parent caring for a loved one. Finding the Light in Dementia will give you more confidence to care by:
- Supporting you through your partner’s dementia diagnosis.
- Helping you understand what your partner is experiencing and how to communicate and connect with each other more effectively.
- Introducing creative ways to stimulate memories and lifestories.
- Helping you make subtle changes to your home to keep your partner feel safe and content.
- Providing tips for sleeping, eating and drinking.
- Showing you ways of overcoming the challenges of changing behaviour
- Suggesting ways for you to care for yourself.
- Giving advice when considering professional care.
Knowing how tired and stressed you may feel, I wrote this book in short, easy-to-read sections, with a summary at the end of each chapter. This practical guidebook also provides space for you to write notes to help remind you of what works when caring for your loved one as well as providing a care plan that will inform caregivers and befrienders about their preferences and needs. There are also question sheets at the back you can fill out when speaking with your doctor or legal professionals that will help you remember important aspects about your partner’s (and your) care and welfare.
“This is an insightfully wonderful book for both caregivers and professionals alike. ‘Finding The Light In Dementia’ helps to calm the overwhelming feelings that come with a diagnosis of Dementia or Alzheimer’s. It is almost as if Jane has gently taken your hand in hers and is walking alongside you, encouraging you through this new chapter of your life. She has provided wonderful information; plus note pages at the end of the chapters for you to keep a record of the questions you want to ask the Doctor. This book is a much-needed gift to yourself.” Carole Fawcett, MPCC, Counsellor
Planning ahead may help to avoid difficult situations arising and sometimes even avert a crisis
FIVE STAR AMAZON REVIEW
This is an excellent guide for anyone who has a family member or friend suffering with dementia. Really helpful advice and explanations on why certain behaviours happen and how to deal / cope with them. The best bit about this book is it is easy to read – short chapters and clearly written with very little jargon, so it is very accessible. It’s also helpful to have sections for making notes about your own circumstances, the idea being that you have the day to day information to take to a doctor if needed.
The book takes you through from initial diagnosis all the way to making the decision to look at residential care, and it truly does “find the light” in all stages of that journey. It is reassuring for someone who has little or no experience with dementia to know that as a carer they are not alone, as quotes and comments from real life people are included throughout. It is a very positive book and has real tips and techniques for dealing with the situation of having a loved one suffering from such a cruel disease. Sandra, daughter
Finding the Light in Dementia: A Guide for Families, Friends and Caregivers
“Jane’s compassion and warmth shines through her words. I believe that it will be a comfort to families/ caregivers who are experiencing the fear of a diagnosis and will offer an anchor when they’re unsure of how to communicate. I think it will also be a helpful tool for professionals to help them educate extended family and friends to help them understand what’s happening and manage expectations. Jane has a real knack for taking the ‘edge’ off a difficult subject through her reassuring tone and practical tips. This gives people a pathway to follow through the ‘mist’ as you would say- a guiding light” Mari Evans Mental Health Nurse Consultant.
It is important that you do not face this alone, encourage your friends and family to get involved. Over time you may need to look for some additional support such as from a befriender, who are volunteers that come to help as friendly visitors into your home or as a caregiver. Show them Finding the Light to help them understand how they can communicate and know your partner’s needs which will help them care and connect in a dignified way, thereby helping you and your loved one. You also need to make sure that you look after yourself as you will not be able to care if you are unwell or exhausted, Finding the Light offers some enjoyable quick ways for you to recharge your batteries regularly throughout the day.