Covid and Dementia
Caring with a loved one living with dementia can sometimes be a struggle for people who have little or no social network. The Corona virus has made this more difficult for everyone, having to isolate people in their own homes with little or no contact with the outside world. People who have moderate dementia (which includes Alzheimer’s disease) may not be able to weigh up the risks associated with the virus or understand why they have to follow the government guidelines to self-isolate. Here is some guidance for if you are caring for a loved one with the condition on how to cope during this time.
Hygiene
Make sure they have hand wash & sanitizer & that if they have visitors, they also use it. If the person who has dementia does not understand the need to wash hands, encourage them by saying ” I’m going to wash my hands now” instead of telling them, show them. You could mime what you want them to do such as brushing teeth, people will often mirror you when they may not understand what you are saying, if helpful use music, rhythm can put people in a good mood & help with movement if their joints are a bit stiff.
Trying to Leave Home
The person who has dementia may not understand why they need to stay indoors & may try to leave the house. Try and explain to them that there has been an outbreak of flu and they need to stay in.
They may be used to going out to work: what were their jobs/hobbies? If you have the space set up different areas in the house, look for items in the home to keep them interested & occupied, e.g. typewriter for secretaries, oily rags & tools if they worked on cars, create a working space for them to potter. Think of your senses to create memory boxes of bits & bobs- smell, sight, touch, hearing, sometimes rummaging through button boxes, folding socks, sorting seed packets can help.
They may be wanting to “go home” or looking for their mother; this may mean they may be searching for security & comfort and they may not recognise their own home- avoid confronting them, face them, gently lead them to a light room say something like “tell me about your Mum, she was a good cook wasn’t she? the smell of her cakes….that way you are not upsetting them, but reminding them of good memories & avoiding contradicting them.
Sleep
If the person who has dementia isn’t sleeping well at night, try & get them to sit by a bright window or in the garden in the early morning. Early morning light may help their natural sleep rhythms. Short naps in the day are ok but try & prevent them from sleeping all day. Doze when they doze to give yourself rest – chores can wait, you need rest.
Eating & Drinking
Try keeping up your fluids with sips of warm water regularly throughout the day, if your loved one is reluctant to drink, let them mirror what you do, you could say “Lets have a cup of tea/coffee together.”
Reducing Stress and Anxiety
While it is important to understand the latest guidance from the government, just do this at a set time of the day – there is so much “noise” on social media and the TV – it can become overwhelming.
Professional Caregivers Visiting
At the moment carers are classed as key workers, they should be issued with the appropriate protective clothing. Please make sure they wash their hands as they come into your home.
Staying Connected with Others
A great way to see your family and friends and stay connected is via the internet. If you can download Zoom onto your computer this link will show you how: https://support.zoom.us/hc/en-us/articles/206618765-Zoom-Video-Tutorials
If you have time, and have an email connection with other members of the family or friends ask them to send an electronic photo of themselves with the person you are caring for and to write the name of the people in the photo, the date and why it was an important time.
Needing to get Food & Medical Supplies
Supermarkets will prioritise you, ask your family/friends to arrange an online delivery, speak to your local pharmacy.
Admiral Nurse Dementia Helpline: 0800 888 6678 https://www.dementiauk.org/information-and-support/specialist-diagnosis-and-support/admiral-nurse-dementia-helpline/
Alzheimer’s Society Helpline 0300 222 11 22 https://www.alzheimers.org.uk/dementia-support-services
For more tips, advice and support see our Finding the Light in Dementia Course for Families, Friends and Caregivers
https://www.findingthelightindementia.com/onlineguide/
The realities of caring for a person living with dementia and yourself amongst the development of symptoms are very real and unrehearsable on an emotional level. My dad became poorly with pneumonia and coronavirus whilst living with advanced dementia and 82 amazing years so far behind him. Complicated by other health issues.
My gut feeling was to plan for any potential isolation or hospital quarantine and develop as a story over the next couple of days.
Each person is so individual..and my dad being quite understanding.with me. in his nature accepted my friendly mentions of ppe protective clothes and the use of masks. From DIY to general hospital use.
How ambulances were helping other people too and the importance of people keeping their distance and the need to keep in touch by other sources. Please dont misunderstand, the above was communicated in our own way communicated and developed between us over 10 yrs.
3am the next morning..he was rushed by ambulance to the hospital. Tested positive.
Clinically quarantined and isolated. The staff are fully in touch and guided by us in relation to what helps him , whilst also asking him..in an appropriate manner. He s not frightened or concerned , just keeping them constantly learning..
Nothing can prepare you for the way you feel. But prepare we must. For us it happened quickly.. but being
Ahead of having had that time to respond to my dad s comments and body language helped to focus on em willing his recovery. The days ahead are full of peaks and lows..blames and woes.
Now we are learning how to deal with something that we thought we knew everything about.
Dear Ceri, Thank you for your insights into how you are coping with this situation, I am so glad your Dad is not concerned and hope you will be able to continually help support the staff in his care. Kindest regards, Jane